Saturday, July 20, 2013

It's Raining It's Pouring

The old man is snoring...yup just did a check of that myself.  So, it is actually raining.  Know what I miss (the list is so very long now)?  Running and playing in the rain.  So, if you can do those things you love still.... DO THEM!  Don't waste your life thinking about any reason to NOT do them.  Excuses are easy, real fun takes commitment.  So, since I can't run and play because, that would end badly. I will just to prove I live the life I preach.  Not looking very Faaaaabulious but that is not the point.  The point is to enjoy everyday the best you can.  Nothing is promised to us but death and taxes so...the rest is up to you.  Tonight my spine is so mad a swollen yet I got up and made a point to let the rain fall on my face. It has been a really really long time with no rain. 



My big feat each day is to turn the sprinkler on the garden on my own!  Wooooo Hooooo!  Folks, be GLAD you can do those jobs most complain about.  I would give so much to be able to get the trash out of the can on my own.  Taking in all the joy where you can find it works for able body people too.  If you hate your life....FIX IT!  Stop complaining!  Make the changes you need to be happy.

I won't lie.  I have dark days which, will rear their head here now and then but not for long.  I can NOT or will NOT let that be all there is of me.  Life is short.  There is a whole lota crazy in the world and most of it is around me...do I let them suck me in to the black hole that is their existence or do I rebel a little? What do you think?  Oh, I pay for it, but you know, somethings are worth the trouble you get into for doing them.

Also, side note if someone is happy and you are not....don't kill their joy.  Let them be them.  Simple happy and silly if THAT is what THEY chose.  They are not odd for wanting better you are for not.  Would it be so terrible if you joined in the silly?  Try it. 

That is all. 

Friday, July 19, 2013

Just another day

This week has been a good week.  It is Friday night and while most are out on the town having fun, I sit here writing to you.  I don't have many good weeks these days as I seem to get worse as the days go on.  I have had three spinal surgeries to date, awaiting yet another.  The first was in 2000.  I was 28 years old.  Far to young to go through what I did.  I was a single mother of two amazing little ones struggling to meet the demands of motherhood and life.  There never seemed to be enough hours for all I had to accomplish yet, I pressed on.  When I found out I would have surgery I was scared I would never find my way back to the only peaceful place I had known, the back of a horse.  I was told I would walk, but never ride.  This is me last August.


As you can see, I don't do "never" or "no" very well.  Some of the bulk you see is the back brace I wear almost constantly along with about 50 lbs. I would very much like to part with.  When you can not move...you can't do much.  I can't walk very far at all these days.  Being on the back of a horse has long been proven good therapy for those who are disabled.  The motion simulates the hips natural movement of walking for those who can not.  I had to get help to get up of course and I can't ride long but, I can ride.  The horse really does all the hard part. 

I have not been up since last August and it kills me but I need a better set up now (which I am working on).  Today was quiet.  I can do things, I just need lots of help and this week I am here with Travis (my son) who has to work in the evenings.  This means that anything big has to happen before he leaves.  I am usually never alone long.  I remember the days when I could be.  I remember wanting to reach something on a shelf or carrying laundry and I just did it.  Those days are gone...for now.  I still have hope one day I will be "fixed" for good.

People take for granted all the things their spine does for them.  Everything you do depends on those bones being linked together and functional.  Sometimes, even the smallest movement sends me over the edge.  I often get "locked" in place and can't move in or out of the pain I am in.  I have to get help.  Sometimes, it is so bad I can't even say anything.  I just make noise and hope someone will help me.  Everyone here knows the drill, sadly and come to my rescue like it is normal.  It is far from normal...or it should be.  When I am alone, I have to force myself onto the floor then crawl back up.  Sometimes, I don't make it up for minutes, hours even.  Those times I feel the most desperate.  I don't tell my family about those moments because I feel helpless enough.  No one is there to help me and I grab for whatever I can to pull me back.  Life has taken on a whole new meaning and I try to find happiness in the little things everyone takes for granted.  Things, I once overlooked.  Perhaps, it is that fight in me for a better life that has kept me alive this long.  Most days, since we are being honest, I want to give up.  I cry and wished with everything I had my life was normal again.  It's not and may never be again.

Tuesday, July 16, 2013

Hi! Intro and why I am doing this.



My name is Michelle.  I am struggling with one of the worst things on earth.  Back pain, it is not something that you can just say is annoying.  It is massive and has almost destroyed my life.  Well, it actually has to some point.  I am doing this because, I know there have to be others who are struggling with this very same thing.  People think it is a cop out or perhaps just a little pain but folks, your spine controls everything and it is not something to mess with.

What I hear most is “How did this happen” and “what a pity you are so young” became almost, an everyday occurrence. I was no longer Michelle.  I was the girl with the horrible back problems.  People would watch me as I walked down the limestone hill filled streets of Eureka and wonder what was wrong with me.  Those who live in our small town know the story; because one of the drawbacks to small town life is everyone knows everything (or thinks they do). 

It began when I was little I suppose.  I had an awkward and remarkable birth so I am told.  I was a rare child and that theme has followed me all of my days.  The word rare for me is almost a curse.  Some of the things that have happened in my life were written up to that very word.  The strange things or events were always wrapped tightly with a pretty bow of rare.  My birth was viewed by many doctors and nurses in an oval observation room.  I was full breach – meaning my back was coming out and not my front.  I imagine it was quite a shock and very painful for my mother (sorry mama).  With the world (seemingly) watching on I was born.

As I grew, I had horrible leg pains my father called “growing pains” he would faithfully rub my legs with Ben-Gay almost nightly.  My mother took me to the doctor concerned about my coordination and the fact I ran into everything.  Graceful, I was not.  She enrolled me in dance lesson to try to combat my ever so dysfunctional ability, or lack of ability  to walk correctly.  I was later tested for Scoliosis which they said I had two minor curves.  My father said “they will straighten out” and that was the end of that.

More years past and I began my obsession with horses.  I wanted to ride more than anything,  I rode the propane tank for a year to prove I would actually “stick with it”.  My father was doubtful to that but agreed to let me take lessons.  I began with Marty Allen Wernle when I was 11 years old.  He placed me on an old reliable western rental horse from Brackenridge Stables in downtown San Antonio.  I had been riding no more than a month when it happened.  I heard the sound of hoofs behind me in the ring.  In an instant I saw her pounding by, with all the power and grace of non-other than a Saddlebred.  I turned to look over my right shoulder to see the most amazingly beautiful thing I had ever seen.  Julie, riding Sea Story.  The pair was more than majestic.  They moved as one, with her arms and head held high, his hoofs chest level with each step and head raised high and curved like only a Saddlebred can.  It was as if time had slowed enough for me to “know” this was what I wanted.  She passed me, hoofs pounding in unison and I turned my old cow horse into the rail and headed straight for the middle of the ring.  Marty looked puzzled.  He said “is everything ok baby”?  I pointed at Julie and Sea Story and said “that, that whatever that I that is what I want to do”.  He smiled and said “baby that is harder than it looks are you sure about that, your daddy wanted you to learn Western.”  I smiled “I don’t care, that is what I want, teach me to be like that.”  You see for me, the ever clumsy awkwardly tall girl who never could be “good enough” wanted that grace and beauty more than life itself.  The very next lesson I was on Harvey a gray Saddlebred/Trick horse.  That is when my love really began and to this day one of two things I am untouchable at.

This intense pain has taken away so many things.  Right now, I am at risk for a disk blow any moment.  When the vertebra at L3 basically explodes.  I have no warning, no date to worry about as it could be any time now.  Which limits what I can do because in part when it does explode it is a nightmare. I am scared to death.  Horrible pain and sometimes the loss of feeling in extremities (that happened the first time and wheelchairs suck).  

 My life, if you can call it that is full of so much pain I can’t even begin to tell you yet, I fight.  You have to ya know?  It is so hard some days and my “good days” would send most to the ER screaming.  I have broken (now 3) teeth in the back from gritting through the pain.  First of all I don’t like being operated on (it scares me) and second it is very expensive and I am not a rich girl.  I struggle with everyday things but once in a while it is not as hard to do things without assistance though, the list grows shorter each day.  Every move and every breath you feel it.  People think “oh yeah right, your back hurts” well let me tell you it makes me want to hit things it is so bad.  It is not a minor thing – it is huge and is consuming me.  I am doing this to maybe explain and help others who are struggling with this issue.  I hope what you read here helps you.  It will be what I am going through but also my family.  You see chronic pain of any kind not only takes from you but from your family as well.  Also, this gives me something I can do without help.  I will work on it as I can so please be patient.  If you need me or have a question I will post my email address shortly.  So, sit back put your feet up and enjoy the horror that is my life….just kidding (sorta). J